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Eli and Ella’s Battle with MLD

Eli and Ella’s Battle with MLD

Becky and Steve Vivian have four beautiful children – Eric, Evan, Eli and Ella, three princes and a princess. But theirs was not a fairytale story without a treacherous villain. Becky had noticed many signs that something was not right with her youngest boy Eli. She noticed thing like his...

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Kadin

Kadin

Meet Kadin White. Kadin is a loving 11 year old boy who was born with Down Syndrome, a developmental disorder of the human gene code. Kadin has difficulty communicating his needs. He is able to speak in simple sentences, but struggles to express more complex needs such as emotions. Yet...

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Desi

Desi

Desi is a very vivacious five year old girl. She had a wide variety of interests including playing soccer, learning ballet, and learning how to play the piano and the violin. In the beginning of September of 2013, Desi fell from her bed. She struggled to walk the next day so her family took her to urgent care.

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Ali’s Journey with NBIA

Ali’s Journey with NBIA

Ali was born on September 9, 2004. She is a fun, sweet, loving girl who makes her family very happy. But Ali and her family have been faced with a mammoth challenge, when just after her 8th birthday; Ali was diagnosed with Neurodegeneration with Brain Iron Accumulation (NBIA). NBIA is...

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